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Privacy policy and data security measures

Data security measures

The following is a technical explanation of the measures we take to protect your data. If you have any questions about this information, please contact us by email at info@egidpartners.org or by using one of the other options described in the “Contact Us” section of the website.

All study information will be stored in linked data tables. Identifying information (email address) will be stored in separate (but linked) data tables so that health-related data can be viewed by EGID Partners study staff as needed without inadvertent association with identifiers when such linkage is not required.

Glossary

Here are terms are used in this Privacy Policy:

“Personal Information” is information you supply to EGID Partners that allows you to be individually identified. This includes (a) identifiable contact information, such as name, address, telephone, and email address, (b) information you provide about yourself, such as your health or lifestyle information, and (c) “coded information,” which is the same information as (b), but with all of your identifiers and contact information removed and a random alphanumeric code assigned to it for search purposes.

“De-Identified Data” means information that does not identify individuals. In regards to your health-related information, EGID Partners will follow the standard set by a federal law called HIPAA (the Health Care Portability and Accountability Act). The HIPAA Privacy Rule specifies eighteen (18) data elements that, alone or in combination, could identify a person. These include information such as your name, address, phone number, social security number, and photos of your face. Generally speaking, when all 18 of these identifiers specified by HIPAA are removed, the information that remains is “de-identified”.

Thank you for reviewing our Privacy Policy.